April 2012
What's the Difference Between "Disease" &...
heathersday:
Among the many confusing things you have to deal with when trying to learn about fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS or ME/CFS) is the difference between a disease and a syndrome.
It’s common for people who don’t believe in FMS or ME/CFS to dismissively say FMS and ME/CFS are not really “diseases.” That leads some people to believe that they’re not...
March 2012
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A Bell is Ringing!!!: Scream/Yell - YES; Give up... →
lovelyday2bme:
PAIN PAIN PAIN PAIN
WILL IT CEASE OR AT LEAST EASE UP?
I NEED SOME THING TO CHANGE IN THE STATUS OF MY PAIN IMMEDIATELY
I AM SORRY FOR THE LEAVING THE CAPS LOCK ON FOR THIS MESSAGE
I KNOW THAT MAY APPEAR RUDE BUT I REALLY AM YELLING
MORE LIKE SCREAMING LOUDLY
NOT SURE IF I SHOULD HAVE A…
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lovelyday2bme:
It is time to switch birth control again because this one is not working.
Ovulation pain and PMS while on this pill as if I am not taking it. Annual exam in mid April or May so we will discuss it.
I get so tired of having to switch all of the time
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Inside My Weird Mind: I have a horrible headache.... →
just-being-mexoxo:
I have a horrible headache. It’s not a migraine. The only thing I can compare it to is a spinal headache after my spinal tap. If I lay down its fine but if I sit up or stand up its horrible. It’s been going on for weeks not and it’s not fucking anxiety and if the doctor says that one more time I’m…
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What Hospitals Won't Tell You - Vital Strategies...
Special Thanks To:
Blaine
What Hospitals Won’t Tell You - Vital Strategies that Could Save Your Life
Hospital errors are a leading cause of death, killing 100,000 people a year in the United States. Will you or your loved one leave by the front door? Hedge your bets from the get-go - win medical arguments, keep your supplements, choose your best advocate… and take a black...
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Gluten Free & Vegan Chocolate Chip Cookies from Elana’s Pantry are in my oven! We’ll see how they turn out!
2 ½ cups blanched almond flour *
½ teaspoon celtic sea salt
½ teaspoon baking soda
½ cup grapeseed oil
1 tablespoon vanilla extract
½ cup agave nectar
1 cup dark chocolate chips
Combine dry ingredients in a large bowl
Stir together wet ingredients in a smaller bowl
Mix...
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Endometriosis Awareness Month: 30 Day Invisible...
endometriosis:
The fact that you read this list makes me feel…
…blessed. I am truly thankful for all of you that come by to read the things that I post. It means a lot to me that I can reach out and tell my story and hopefully help someone in the process. Thank you to each and every person who reads, sends me email and supports me each day and in my pursuit to raise awareness of this...
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Fuck you Crohn's
constantheadaches:
d—rose:
I want my life back.
I think this every day.
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So this is crohn's...
constantheadaches:
I was super excited for dinner tonight.
Got in the middle of eating and started to feel that “uh-oh” pain I know all too well
So I sat and waited, praying an attack wasn’t going to come
Then after a little while of nothing, I start to get a little hungry again.
Think I’m going to be fine, and the pain comes back.
Then it goes away, and I get hungry again…
It’s been back...
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just-being-mexoxo:
I can’t stop drooling on myself maybe I should get vitamins another day
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Inside My Weird Mind: Good morning everybody →
just-being-mexoxo:
If parts of this don’t make sense please know I’m on gabapentin and Percocet. I’m so tired. My feet and legs were burning and in the pain for hours to the meds kicked and I usually don’t have scream but that shit was the worst. I have to go buy multivitamins. I’m fuckinh getting the gummy things…
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: Sharing the Little Things: Part I →
chroniccurve:
Today I:
Managed to dry and straighten my hair. If we’re being honest here, I hadn’t been able to shower for seven days up until last night.
Lunch with Hannah (Crohnsandarthritis, whose blog you should check out)
I found close handicapped parking on campus and at the store
Dove…
welcome, friend!
fibrosupport:
I’m Raye. I’m 22. I was diagnosed with fibro when I was 10. my mother and I started showing symptoms around the same time, she was 37, i was 7. She got a diagnosis when she was 38 and i had to wait two years. I guess I’m looking for friends. I’m pansexual and genderqueer.
by genderfluidbearcub
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Fibromyalgia: A Functional Medicine Approach →
Functional medicine focuses on the prevention and treatment of chronic disease by finding the cause of the imbalance or symptom the person is experiencing.
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Kids With Crohn's Disease, Colitis Often Struggle... →
2tuffhuff:
“Children with the condition missed more days of school than healthy kids, and those who missed lots of school had lower grade point averages, according to the study.”
They actually had to do a study to find this out? News flash, “Sick kids miss more school than healthy kids. Kids that miss lots of school have lower grades than kids who don’t.” Can we spend some research money on...
Sunshine, been keeping me up for days:... →
hellomynameismaddy:
Is anyone a member of DYNA? I’ve thought about joining a couple of times, but aspects of the organization rub me the wrong way.
First of all, “Youth Ambassadors”? We’re sick kids; why don’t we call a spade a spade?
And hm, they only take (bold is theirs): emotionally healthy individuals. What…
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chronicallyscrewed:
Sometimes I go to bed early and say to myself, maybe tomorrow I’ll wake up and be a little better because of this. I never am. Sometimes I can be even worse.
It’s just incredible that in many ways I have become a cynic, but there is still that little glimmer of hope.
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A Bell is Ringing!!!: My island wellness →
lovelyday2bme:
The pain, the pain, the pain…(gasp)
I’m so tired of the pain. I’m tired of losing sleep because of the pain.
I honestly don’t remember what rest is…I sleep but rest I don’t do so well.
I understand my pain because I understand the way this illness affects my body, plus I pay close attention to…
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I got a few more asks about this
just-being-mexoxo:
So I will address this.
No I DO NOT ATTEND NYU!!! I OCCUPY CHAIRS IN THE INFUSION SUITE, FOR RHEUMATOLOGY IN THE CENTER FOR MUSCULOSKELETAL CARE AND I GO TO NYU HOSPITAL FOR BEING SICK. I have Systemic Lupus Erythematosus (SLE) also few other annoying complications or autoimmune disease and my rheumatologist is AFFILIATED with NYU.
I am a Patient, NOT a Student. lol Sorry...
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Endometriosis: Endometriosis Awareness Month: 30... →
endometriosis:
I’m involved with this challenge because…
…I believe that knowledge is our greatest weapon against this disease. We need to give the millions of women out there struggling with this disease a voice. If we are loud enough, people will listen. I also want there to be knowledge from real women…
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F.D.A. Approves New Anemia Drug →
The Food and Drug Administration approved a new anemia drug called Omontys for dialysis patients, which will end Amgen’s 24-year monopoly led by its Epogen drug.
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Well: The Challenge of Driving With... →
Researchers and driving instructors are finding themselves faced with a new challenge: the growing number of teenagers with Asperger syndrome and other forms of autism, conditions defined by deficits in social skills and obsessive interests that can make learning to drive especially difficult.
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Out of order again
lovelyday2bme:
Pain from endometriosis and other pelvic pain disorders is driving me wild. I hope that I am able to rest tonight because every thing hurts. I have a fairly busy day later so my body needs to get in order.
Rest well all
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Always Thinking: My new disease! →
foreverseptember:
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001457/ Some high, er low points include, •Ankylosing spondylitis is a long-term disease that causes inflammation of the joints between the spinal bones, and the joints between the spine and pelvis. It eventually causes the affected spinal bones to…
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My Favourite Pair of Jeans
*Social pleasantries*
Me: I'm out of this drug and that drug.
Me: My ears hurt.
Me: I feel very sick.
Me: My knee keeps making snapping noises and I need a sick note for Friday.
*Physical exam*
Doc: Your ears are this, don't use earphones, take these drops.
Doc: You have this stomach bug, eat complex carbs, drink lots.
Doc: This ligament is doing this, do these exercises.
Doc: Here's a sick note and all your 'scrips.
Me: ...
Me: Stay with me forever?
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Home Remedies for High Blood Pressure | Natural... →
High blood pressure is experienced by nearly 68 million adults in the United States alone — that’s 1 in 3 adults. Often accompanied by excess weight, high blood pressure is a major risk factor for stroke, congestive heart failure, kidney disease, and the leading killer — heart disease. If you are someone who has high blood pressure, the mainstream medical industry wants nothing more than your...
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♥Umm... its me??!♥: DAY 2 OF... →
just-being-mexoxo:
So yep I’m on to day 2 cause they still have not given me my blood results as to when I can complete my final cytoxan. They are so full of shit! After this I swear the better hand over my results cause I am switching rheumatologist this is just too damn much to handle. I should be going to into…
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Thyme may be better for acne than prescription... →
Herbal preparations of thyme could be more effective at treating skin acne than prescription creams, according to research presented at the Society for General Microbiology’s Spring Conference in Dublin this week. Further clinical testing could lead to an effective, gentler treatment for the skin condition.
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Endometriosis: Endometriosis Awareness Month: 30... →
endometriosis:
The nicest thing someone did for me when I wasn’t feeling well was…
…there are a lot of things:
- my dad holding me up while I cried in his arms.
- my parents rushing me to the emergency room several times when i couldn’t deal with the pain any longer.
- my parents arguing with various…
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Cranberry, Lingonberry and Blackcurrant Juices... →
Among other benefits such as reducing metabolic disorders, new data suggests lingonberry, cranberry and blackcurrant juices may play a role in reducing hardening of the arteries.
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Research Shows Hot Peppers Also Prevent The Number... →
Capsaicinoids found in cayenne pepper, jalapenos, habaneros and other chili peppers already have an established treatment role in creams to address joint and arthritis pain. They also promote fat burning, increase metabolism and even kill cancer cells.
Scientists have now reported the latest evidence that chili peppers are a heart-healthy food with potential to protect against the No. 1 cause of...
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Parenting with Chronic Fatigue Syndrome (No... →
persephonemag:
My 8 year-old daughter said to me recently, “Mommy, I wish you weren’t tired all the time so we could do more things together. Like go to the park.” Now, to be fair, we occasionally go to the park, but it is far from a regular habit. Whether kids intend to make us feel guilty or not, we think there’s always something more we should be doing. Those thoughts are all the more intense...
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just-being-mexoxo:
I have a rash all over my face. And it not malar or my rosacea. My face feels dry so I put moisturizer on ( that I had from a dermatologist) and my face feels dryer with patches of peeling actual black marks around my eyes. And above my lip and on my forehead.
Grrrrrrrrr
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ME/CFS is an evil Catch-22.
dispatchesfromexile:
Almost everything you could do to keep from getting worse is something the illness prevents you from doing.
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♥Umm... its me??!♥: Haha!!! Did you... →
just-being-mexoxo:
Day 1 of pissing off NYU idiots of the rheumatology department. I want results from my STAT CBC that they said they would call me with (and of course these asses did NOT!) And I wanna know when I can infuse. If they don’t take my health seriously. I will make them by calling everyday till I’m…
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