I did not have a serious reaction but I am incredibly itchy so I’m taking Benadryl. Also, I will be watched for any other reactions. I’m just grateful to be home right now. Thank you to everyone who messaged me, prayed for me or have me advice
(Source: my-lupus-state-of-mind)
On my way to NYU CMC Infusion suite. Positive thinking, everything will be okay today. Still very anxious about Rituxan but trying to calm myself down.
(Source: my-lupus-state-of-mind)
I’m too tired to care about anything. Let’s only hope tomorrow’s Rituxan #1 goes well and that maybe, just maybe…. *fingers crossed* lupus goes in remission and gives me a break!
Not feeling great tonight
(Source: my-lupus-state-of-mind)
It’s snowing outside and fucking cold. I’m waiting for the elevator and I called to the 4th floor to let the door close. After a while I had to walk up the steps with my swollen feet and legs. This bitch saying come on dont be like! BITCH IT’S FUCKING COLD! If you unpacking shit say something. You straight up ignoring me that why got your ass the super cuss out. I’m fucking mad right now
(Source: my-lupus-state-of-mind)
The poster in question, for you Anon!
Haha. I made this & it’s just popped up on my dash again.
(via my-lupus-state-of-mind)
Something that pisses me the hell off! I have a headache. I called the neurologist I’ve had this headache for 5 days. He says let’s do 30mg of prednisone, let’s do more gabapentin, more Norco. How about let’s do something else because I take those great meds and I’m doing horrible?
I call my…
(Source: my-lupus-state-of-mind)
And my poor memory well the infusion center has not called so I guess I have to call my rheumatologist. She scheduled my appointment to be between Rituxan. I’m pretty sure they haven’t called because I need to sign a consent form ahead of time. All the time I’m home taking Norco and gabapentin just to get through a couple of hours. It’s a shit day when your alone for hours twitching and unable to get to your medications. I want it to end!!!
(Source: my-lupus-state-of-mind)
I complain a lot! A LOT!!!
My mom has a lot of coworkers with lupus. They did this, they did that and they’re better. Congratulations! I am trying to get to remission. They always send advice, some of which is questionable and I think some is just from my mom. I don’t know maybe she’s inspired by…
(Source: my-lupus-state-of-mind)
Nothing I love more than taking a nice warm shower, pain medicine working decently and nice clean sheets to sleep in
(Source: my-lupus-state-of-mind)
Ugh!!!! I thought I was finished with ophthalmology for the next 6 months!!!!! My ophthalmologist just called and spoke with my retina specialist and though my eye looks good and nerves look great the field vision test still is bad and so now I get to see a third specialist called a neuro ophthalmologist. Now I’m afraid of what they have in store for my eye
(Source: my-lupus-state-of-mind)
I was taking a nap and the bell rang. I sat up real fast cause people like the ring the door bell extra like I didn’t hear it. I just felt so dizzy. So I’m at my door and I know this dude thinks I’m drunk. I dropped the box (which is my birthday gift perfume) then fumbled and nearly dropped the…
(Source: my-lupus-state-of-mind)
I seriously need some venting… They woke me up early to make me do long distance calls that my dad will probably want to rip my phone out my hands for just for my mom to be mad at me. I’m angry that she has the audacity to be mad at me. Sorry that I had to buy new bras because they ripped, and some other under clothes because well I need it. Because she took money out I can’t use my birthday coupon for Victoria Secret’s on my birthday and she’s mad at me? Has she gone mad?
(Source: my-lupus-state-of-mind)
My mom was seriously dreading calling her father and when I saw she was dialing I RAN!!! And I ran like I wasn’t in pain. So she said “you leaving me to do this alone??? You no good!!! You no good!!!!!”
No I am not! Lol I love my grandpa but he wants me to read and listen to the secret and it…
(Source: my-lupus-state-of-mind)
4apessimistimprettyoptimistic:
Dreading physical therapy tomorrow, it’s going to storm and will to pour all day. I don’t feel good and I’m still flaring. WTF did I get myself into? I’m swollen, sick, sad and screwed :(
(Source: my-lupus-state-of-mind)
4apessimistimprettyoptimistic:
Ok… Lupus has my ankle today that means STAY OFF THE FOOT!
(Source: my-lupus-state-of-mind)
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