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You know you are too skinny when vultures circle over your head, while you’re sunbathing.
Yep, happened to me today.. >:-/
"— N.Morgan~
Sometimes I long to take care of others, but how could I take care of others when I fail to take care of myself?
Recently, I’ve been ordered to rest however all other things in life continue to demand my attention
How can I rest when there is much to do?
Although I struggle to rest peacefully; the pain throughout my body has knocked me down, making it nearly impossible for me to do anything but rest
Something within my body is not right…I mean more than the usual things that are out of order in my body
One of the most difficult questions for an individual with a chronic illness to answer is “how are you feeling today?”
Doctors and patients are never supposed to lie directly to each other, but rare is the examining room where complete mutual honesty prevails.
pain
I hate when doctors ask me to rate my pain from 1 to 10. HATE IT. it’s hard to tell anymore. what used to be a 8 is now like a 4 because i’m used to it. i’m tougher. because i’m saving the 8 for when it’s a normal person’s 20. Although i feel like saying “4,” i feel like it makes it seem like only a wussy irritation when it still hurts as bad as the 8. i don’t want to be used to it. i just want it to go away.
or maybe give us a pain scale from 1-100. I want to say 8 so they take me more seriously (or maybe they do already, I don’t know). but i mumble “four” and pray they read between the lines.
Chronic Pain person’s scale:
- why even bring it up?
- meh, minor irritation
- alright I don’t like this at all
- this sucks
- time to take something
- yikes, time to double the dose or take a nap or both
- i hate my life. i hate my life. i hate my life.
- deep breathing, take a bath, grit teeth, take more meds. try not to panic.
- call the doctor
- ER.
Regular person’s scale:
- this sucks, post pain status on facebook
- time to take something
- take a bath, deep breathing, try not to panic
- double the dose or take a nap
- call the doctor, possible trip to ER
- go to ER
- probably dying
- demanding morphine
- all out hysteria
- childbirth.
What do you fellow spoonies think about the 1-10 scale?
-crumbsinthesandi think i figured out where the hopelessness comes from.
when you’re chronically ill, life loses it’s possibility. you never wake up and wonder what you could go do, you don’t make plans. you just bear down and merely try to exist through what you have to.
-crumbsinthesandSometimes I get tired of being a member of the chronic illness community
I just want to cry
But crying alone
Makes me cry even more
I hate when it feels like no one cares
Yes, I know that there are people who care but I’m discussing feelings now
I feel like a burden to people I love
I try not to discuss the state of my physical health because its a chronic…
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“Chronic illness takes its toll on friendship for several reasons. We become undependable as companions, often having to cancel plans at the last minute if it turns out we can’t get out of bed on the day of a scheduled commitment. And, living in the world of the sick, we gradually have less and less in common with those with whom we worked and played.”
“Knowing these reasons doesn’t make the isolation any less painful an adjustment as we watch people disappear from our lives one by one, some after dozens of years of friendship. On top of this painful personal experience, we also encounter all the ‘healthy living’ advice that tells us that maintaining an active social life enhances both mental and physical health. And so worry is added to isolation.”
——Toni Bernhard——
"— (via iamkarennicole)
(via lovelyday2bme)
Sickgirldiary’s Kelly Patricia’s video on how to stay motivated! It is great and I watch this when I am feeling not so motivated.
Everyone says they want a “healthy” child. Since the day I was born I was never a “healthy” child. Additionally, as I aged my “healthy” child rating continued to drop.
So now I’m wondering - are children who are not “healthy” loved less than those who are?
But the real question is “how do we…
“i dont feel well”
“thats because you stay up too late”
i have never seen a more accurate description of my life
(Source: calibornumbra, via cardsforpain)
