i think i figured out where the hopelessness comes from. 

when you’re chronically ill, life loses it’s possibility. you never wake up and wonder what you could go do, you don’t make plans. you just bear down and merely try to exist through what you have to.

-crumbsinthesand
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pain

I hate when doctors ask me to rate my pain from 1 to 10. HATE IT. it’s hard to tell anymore. what used to be a 8 is now like a 4 because i’m used to it. i’m tougher. because i’m saving the 8 for when it’s a normal person’s 20. Although i feel like saying “4,” i feel like it makes it seem like only a wussy irritation when it still hurts as bad as the  8. i don’t want to be used to it. i just want it to go away. 

or maybe give us a pain scale from 1-100. I want to say 8 so they take me more seriously (or maybe they do already, I don’t know). but i mumble “four” and pray they read between the lines. 

Chronic Pain person’s scale:

  1.  why even bring it up?
  2. meh, minor irritation
  3. alright I don’t like this at all
  4. this sucks
  5. time to take something
  6. yikes, time to double the dose or take a nap or both
  7. i hate my life. i hate my life. i hate my life.
  8. deep breathing, take a bath, grit teeth, take more meds. try not to panic.
  9. call the doctor
  10.  ER.

Regular person’s scale:

  1. this sucks, post pain status on facebook
  2. time to take something
  3. take a bath, deep breathing, try not to panic
  4. double the dose or take a nap
  5. call the doctor, possible trip to ER
  6. go to ER
  7. probably dying
  8. demanding morphine 
  9. all out hysteria 
  10. childbirth. 

What do you fellow spoonies think about the 1-10 scale?

-crumbsinthesand
Comments
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “You should be more active, that will help”]
Thanks for the advice, but I’M IN TOO MUCH PAIN TO MOVE.

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “You should be more active, that will help”]

Thanks for the advice, but I’M IN TOO MUCH PAIN TO MOVE.

(via my-lupus-state-of-mind)

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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “My chi is not the problem.”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “My chi is not the problem.”]

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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “90 year old woman offers to help.”]
I’m 20 with a cane. She’s 90 with a walker. This seems backwards.

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “90 year old woman offers to help.”]

I’m 20 with a cane. She’s 90 with a walker. This seems backwards.

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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “I’m not moving. You can’t make me.”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “I’m not moving. You can’t make me.”]

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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Go to ER, doc asks you what meds to give”]
I’m sorry if this has been done before, but this happens every time, and it never fails to crack me up.

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Go to ER, doc asks you what meds to give”]

I’m sorry if this has been done before, but this happens every time, and it never fails to crack me up.

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chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “’This is extremely rare.’ I defy statistics!”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “’This is extremely rare.’ I defy statistics!”]

(via cardsforpain)

Comments
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Tell pdoc you need a heavy duty tranq for insomnia. Gives you “mild” pill instead. Awake for days”]
Seriously I am so sick of docs not listening to me/taking me seriously. I have lived with this (and all my other illnesses/disabilities) my ENTIRE LIFE. I have not been adequately medicated for my insomnia for months now and I am seriously on the verge of a mental breakdown. If I didn’t have class tomorrow morning I would be in the ER right now. That’s the plan for tomorrow night if this continues. I just can’t deal anymore.

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Tell pdoc you need a heavy duty tranq for insomnia. Gives you “mild” pill instead. Awake for days”]

Seriously I am so sick of docs not listening to me/taking me seriously. I have lived with this (and all my other illnesses/disabilities) my ENTIRE LIFE. I have not been adequately medicated for my insomnia for months now and I am seriously on the verge of a mental breakdown. If I didn’t have class tomorrow morning I would be in the ER right now. That’s the plan for tomorrow night if this continues. I just can’t deal anymore.

Comments
chronicillnesscat:


[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Forgot what it’s like to poop normally.”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Forgot what it’s like to poop normally.”]

(via fuckcrohns)

Comments
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Prescribed medication for acid reflux” “Side effects: heartburn”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Prescribed medication for acid reflux” “Side effects: heartburn”]

(via cardsforpain)

Comments
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat. Text reads: “Use up your spoons for the day by planning out how you’re going to use the day’s spoons”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat. Text reads: “Use up your spoons for the day by planning out how you’re going to use the day’s spoons”]

(via cardsforpain)

Comments

If there is once thing I need, it’s for society to sympathize less, and empathize more.

Comments
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “See doctor to confirm what you already know, even if they can’t do anything about it.”]
long story short, i’ve been doing serious research trying to pin down all of my symptoms for the last seven or so months.  got an appointment with a rheumatologist specifically so i could get a proper diagnosis—and whaddya know, i was right.  it’s fibro.  pain meds and attempting exercise it is, then.
too bad i’m only on my parents’ insurance until i turn 26 in november and then i’m screwed for appointments and pain meds (not to mention my depression meds) until i can afford insurance on my own. :|

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “See doctor to confirm what you already know, even if they can’t do anything about it.”]

long story short, i’ve been doing serious research trying to pin down all of my symptoms for the last seven or so months.  got an appointment with a rheumatologist specifically so i could get a proper diagnosis—and whaddya know, i was right.  it’s fibro.  pain meds and attempting exercise it is, then.

too bad i’m only on my parents’ insurance until i turn 26 in november and then i’m screwed for appointments and pain meds (not to mention my depression meds) until i can afford insurance on my own. :|

Comments
chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Highlight of holiday to Spain with friends, strong pain killers are cheaper than at home and don’t need a prescription”]

chronicillnesscat:

[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Highlight of holiday to Spain with friends, strong pain killers are cheaper than at home and don’t need a prescription”]

Comments